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Fair data sharing in epidemics and pandemics

21.10.2021

In times of crisis, sharing data rapidly helps make the most out of the information in the data. Let's say it maximises its utility. Pandemics like Zika, Ebola, and now COVID-19 have made this apparent. Yet sharing data rapidly has previously also generated serious concerns of equity. This has led researchers Bridget Pratt and Susan Bull to wonder:

  • Should data sharing in epidemics and pandemics primarily advance utility, or equity as well?
  • How do we set norms for equitable data sharing?
  • Do these norms address concerns raised by researchers, data providers, and other stakeholders?
  • What tensions must be balanced between equity and other values?

Through a systematic review of the literature on data sharing in pandemics and epidemics, Pratt and Bull provide answers to these questions.

Discover what they found in the BMC Medical Ethics publication: Equitable data sharing in epidemics and pandemics

Fair data sharing in epidemics and pandemics
Image credit:
2019, National Cancer Institute via Unsplash

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